We have been in the hospital with Hannah since Tuesday. We are in the epilepsy monitoring unit trying to capture Hannah's seizures on EEG. This is necessary to determine if she can have brain surgery. Apparently her triggers include stress and increased activity level. These are things we don't have while laying a bed eating all day!!!! She has not had any big seizures while we have been here. It is very frustrating. We feel really stuck because there are really only two medications left for us to try. Neither of them look very promising. One works for one type of seizure she has and the other medication helps another type of seizure. But neither one are supposed to work on both!!!! ugh. We are looking more into the VNS (vagus nerve stimulator). There are mixed opinions among the doctors about this treatment. Both the medications and VNS have about less than 5% chance of having control of her seizures. This is why we were really hoping surgery would be an option for her. None of this leaves a very good feeling.
Blitzen has been doing spectacular!!! He acts like he has been doing this his whole life. The doctors and nurses have been so impressed (although we would be happier if he would have something to alert to!!!). He has been on the job comforting Hannah when she is upset. He lays with her in bed and just goes with the flow. He has really helped Hannah be more positive through the hospital stay.
We think we are going home tomorrow. In the morning the doctors will discuss what the next step will be. They don't really feel like there are too many options anymore. Again, not a good feeling!!!