Sunday, January 24, 2010

Giggling girls....

Hannah celebrated her 10th brithday in true girlie-girl fashion!  She had a roller skating party with 10 friends and family.  It was complete with the limbo, hokie pokie, pizza, and of course, cake and ice cream!  She really had a fun time.  It is so nice to see her laughing and having the time of her life.

Taking a break from skating and having lunch....



Singing Happy Birthday to Hannah....

  Once we left the skating rink, 6 girls headed back to our house to spend the night!  Whew!!  They were all really good girls and we only had a couple "tiffs", so I think we faired well.  The girls played games, watched movies, ate more cake, and did LOTS OF GIGGLING!!!!   I am not sure how late it was until they actually  went to sleep.  I fell asleep before they did!  



                                                                                                                                                                                                                                                                                                        
opening presents....(a karioke machine from mom and dad!!)



Look at all those smiles!!!!



Having a blast... and believe it or not, no one got hurt!!!!



how cute are they?????


Thursday, January 21, 2010

10 YEARS OLD!!!!!

HAPPY BIRTHDAY TO MY SWEET GIRL!!!! 

I can't believe I have a ten year old child!!  The old saying is so true.....  Time flies.  It seems like she should still be a toddler.  Most days I really long to have those days back again.  (and some days, ......... I don't!)  I am so proud of her and all she has accomplished already in her life.  She is a nurturer and always the peace maker amongst her friends.  She has to work harder than the average 10 year old, especially in school.  Yet, she LOVES school.  She is eager to go in the morning and gets her books out as soon as she gets home....I am so, so proud and love her so much.

She is having a roller skating party, with all the fixins, this year.  About 11 children are joining in the fun at Skate World.  6 of those girls are coming back to the house for a slumber party!!!!!!  And I am bracing myself.....  This will be the first sleep over of this magnitude.  Pray for me...lol

Next weekend, we are having a family party at my parents house.  Always a fun time with all the cousins!  I will have lots of pics to share later.....


I am also keeping the Chapman familyin my thoughts and prayers today.  They are saying their final good-byes to their sweet girl, Hannah.  I can't imagine the pain they are exeriencing.  They trust in God and His infinite wisdom and know that Hannah is happy and whole.

Sunday, January 17, 2010

In the arms of Jesus....

The 4 Paws family lost one of their own today. 8 yr old Hannah passed away at 5:15 pm today. Please keep her parents, brothers and loyal service dog Koolio in your prayers. Our hearts go out to the Chapman family tonight.

Thursday, January 14, 2010

prayers for a friend...

A friend of ours, Hannah, is very critically ill. Yesterday she started having a seizure that turned status.  She was care flighted and is still intubated today.  During her 2 1/2 hour seizure, she aspirated and now has pneumonia.  As of about an hour ago, Hannah is still unresponsive.  They are hoping this is due to all the medications they gave her to stop the seizure.  Please pray for her and her family.  They need a miracle.  Here is a a link to her blog.  She got her service dog, Koolio, in March of last year....

http://www.hannahstory.blogspot.com/

Thursday, December 31, 2009

This deployment is OVER!!!

Well, we safely brought daddy home last week.  What a week it was....Josiah woke up Monday morning screaming with ear pain.  I took him in, medication on board...We woke up Tuesday, absolutely buzzing with excitement.  We left home at 10 am allowing us enough time to get there.  Gary's Welcome Home Ceremony was at St. John's Arena on the Ohio State campus.  Talk about pomp and circumstance!!!  The guys flew into Columbus and then they loaded them into charter buses, with full police escort to the arena.  All of the families, friends, employers, and LOTS of media were waiting there with intense anticipation....
While we waited, a tv channel in Columbus, started interviewing us, mostly Josiah.  The cameras stayed on us (I have no idea why, other than I have really cute kids!!!)  They reunion was AMAZING!  We were able to go right up to the buses as the troops unloaded.  Hugs and kisses all around....  Then the tv cameras interviewed Gary.  
We were on tv that night in Columbus!!!  Here is a link to the news video.....

http://www.abc6onyourside.com/shared/newsroom/top_stories/videos/wsyx_vid_1898.shtml

After that, we headed inside and started the ceremony.  Let me tell you, it is quite a sight to see 400 soldiers marching in with everyone going nuts!!!  It still gives me chills.  After hearing lots of dignitaries speak, the troops were FREE!!!  It felt so good to have him in our arms knowing he was coming home with us. 
On the way home, we stopped at a Bob Evans to eat dinner.  (wild kids and all!) While we were at our table, the waitress came over and said someone saw our van and wanted to thank us (I had a window decal put on the back window of the van that said "Look out! We're on our way to pick up OUR DADDY!  Our HERO is back from Iraq!!)  This person had purchased a $50 Bob Evans gift card for us!!!!  A perfect stranger; not even sticking around for us to thank them....  There are still nice people in the world.......

This past week has been time to catch up...The kids are home from school on break and eating all of daddy's attention up!!!  Christmas was wonderful.  It was just us.  We stayed in our jammies all day!  I can't remember a better Christmas, ever.....

Hannah has been fairly stable.  We have been having less Blitzen alerts (actually going a couple days with NO alerts!)  The seizures that she has had, haven't been too bad.  For that, I am grateful...  We are looking forward to 2010.  Wishing you all a great new year!!!

Friday, December 18, 2009

CHRISTMAS GIFT!!

DADDY IS GOING TO BE HOME FOR CHRISTMAS!!!!  We are all jumping for joy!! 

Gary is back in the United States...debriefing.  He will be flying home on December 22nd.  They will be having a coming home ceremony at St. John's Arena on the OSU campus.  And then we will be heading home.  Wow.  What a fantastic Christmas gift!!! 

Daddy asked the kids what special activity they wanted to do when he got home....(he is spending a special day with each child).
Hannah: "I want to go roller skating at Skateworld!!"
Josiah:  "I want to go do paintballs!!"
Eli:  "Um, instead of paintballs, can we buy squirt guns and spray each other????"  (I think Josiah told him it can hurt).  so cute....

Monday, December 14, 2009

Full Circle....

Feel like I am walking down memory lane this evening....Hannah officially started Depakote tonight.  This was her very first seizure medication when she was 4 years old.  Wow.  Almost 6 years ago.  I still remember EXACTLY where I was when I was told she was having seizures.  The day our lives changed. Her wonderful pediatrician called me from her home on her day off....I was driving.  I pulled over in a church parking lot and listened in disbelief.  We finally had an answer as to what was wrong, but I felt so blindsided.  The wind knocked out of me.....I had no idea, at the time, what a rollercoaster we were about to go on....good thing too.  I could not have handled it.

So, because we have only two medications left to try and both have a very little chance of helping, we are trying Depakote again.  Six years ago, this drug had very little side affects (if any), but never controlled her seizures.  Her seizures were very different then.  So, we will see if it controls her better now.  We have come full circle..... We are going to wean onto Depakote and in two weeks, start weaning off of Diazepam.  Hopefully, with the holidays and daddy's return from Iraq, we will have a smooth transition of meds.  Faith and Hope.....

Beautiful Hannah...

How this journey started....

Hannah was born prematurely at 34 weeks gestation. She was a relatively healthy preemie; initially having difficulty maintaining body temperature and needing to grow. She weighed 4 pounds 9 ounces at birth. When she was four months old she began to drool, non stop. We were told the first year she was "teething." At 18 months old, we really started searching for reasons of why her shirt was always soaking wet. We saw various specialists who always sent us to another specialist, saying "everything looks okay." She spent years in oral motor/feeding therapy to help her not to drool. It wasn't until she was four years old and in preschool that we started to get some answers. Her preschool teacher commented one day that she wasn't reponding when her name was called. I took this information to her pediatrician who then orderd an EEG, "just to rule it out." Much to our shock and amazement, the results showed, she was having seizures. That is the day our journey REALLY began. Once she began taking seizure medication the drooling almost stopped completely. (She will still drool to this day when she is having seizure activity). Since then, it has been a roller coaster; countless medications and medication changes. She has never really reponded well to any medication.

About two years after she was diagnosed with epilepsy, the doctors noticed that her blood pressure was running high. After many tests, she was diagnosed with hypertension. We still are not sure why, but her cardiologist feels her blood vessels are thicker than normal.

About this same time, we also began looking into why Hannah was such a horrible sleeper. She would thrash, talk, move every which way, during her sleep. The sleep studies revealed that she has alveolar hypoventilation sydrome, which means she has too much carbon dioxide in her system when she sleeps. To help this, she wears a BI-PAP at night. This has been monumental in giving her more effective and quality of sleep.

Every day is a challenge for Hannah and our family as a whole. Blitzen has been an absolutely wonderful addition. She calms herself sometimes just by petting and loving on him. He has been trained in behavior disruptions and will sometimes be able to stop a meltdown from getting out of control.
It has been extra hard on the whole family since daddy is deployed to Iraq. He has been gone since January 09 and will gone until Jan 2010. We get to talk with him by phone and on the web cam; which is nice, but not the same!! Blitzen has helped to make his absence go just a little smoother....